Boston Hemophilia Center. Oral History Project. The Gift of Experience
Overview
Includes recordings and transcripts of interviews with 21 men with hemophilia, aged 40 and older, who were patients at the Boston Hemophilia Center, and 5 physicians and nurses.
Dates
- Creation: 2004-2007
Creator
- Boston Hemophilia Center. Oral History Project. (Organization)
Conditions Governing Access
Collection is open for research. Access requires advance notice. Some transcripts and oral history recordings are restricted until 2027. Restrictions are noted in the finding aid where applicable. Researchers may apply for access to restricted records. Consult Public Services for further information.
Conditions Governing Use
The Harvard Medical Library does not hold copyright on all materials in the collection. Researchers are responsible for identifying and contacting any third-party copyright holders for permission to reproduce or publish. For more information on the Center's use, publication, and reproduction policies, view our Reproductions and Use Policy.
Extent
21 audiocassettes (50 electronic files including documents, pdfs, and mp3s.)2 document boxes
Includes recordings and transcripts of interviews with 21 men with hemophilia, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center.
Historical Notes
Interviews with men with hemophilia were conducted by Laura Gray and Christine Harland Chamberlain in 2004 - 2007. Interviews were conducted by Laura Gray 2005 – 2007 with a selection of caregivers working with men with hemophilia during the period covered by The gift of experience oral history interviews. Gray conducted the interviews in preparation for her book on the oral history project, The gift of experience. The project was carried out under the auspices of the Boston Hemophilia Center, a federally-funded hemophilia treatment center that offers comprehensive care to people with hemophilia and their families. The Boston Hemophilia Center operates a pediatric site at Children's Hospital Boston and a program for adults at the Brigham and Women's Hospital, Boston.
Arrangement
The collection is divided into two series: I. Patient Interviews, 2004-2007 and II. Caregiver Interviews, 2005-2006. Oral histories are listed in each series alphabetically by subject's last name.
Series Arrangement in the Collection
- I. Patient Interviews, 2004-2007
- II. Caregiver Interviews, 2005-2006
Immediate Source of Acquisition
- Accession number 2007-013, Boston Hemophilia Center's oral history project. November 17, 2006.
These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006.
Processing Information
Processed by Virginia Hunt.
Processing staff in the Center for the History of Medicine rehoused the records in acid-free enclosures, reformatted the sound files into .aif files and deposited the electronic files into the Digital Repository Service (DRS) for storage.
Charlotte Lellman updated this finding aid in September 2021 to bring it into alignment with the Guidelines for Inclusive and Conscientious Description (2020). She replaced the terms "hemophiliacs" (4 instances) and "retarded" (1 instance) to "men with hemophilia" and "people with intellectual disabilities," respectively.
Creator
- Boston Hemophilia Center. Oral History Project. (Organization)
- Title
- Boston Hemophilia Center. Oral History Project. The Gift of Experience, 2004-2007: Finding Aid
- Author
- Francis A. Countway Library of Medicine. Center for the History of Medicine.
- Language of description
- und
- EAD ID
- med00066
Repository Details
Part of the Center for the History of Medicine (Francis A. Countway Library of Medicine) Repository
The Center for the History of Medicine in the Francis A. Countway Library of Medicine is one of the world's leading resources for the study of the history of health and medicine. Our mission is to enable the history of medicine and public health to inform healthcare, the health sciences, and the societies in which they are embedded.